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Tag: OCD Journey

119. ICBT as an Alternative to ERP from the Client’s Perspective with Crystal Propes

In this week’s episode, Carrie interviews Crystal Propes about her journey with ERP therapy and her transition to Inference-Based Cognitive Behavioral Therapy (ICBT), highlighting its effectiveness from the client’s perspective.

Episode Highlights:

  • Insights into Crystal Propes’ personal journey with OCD, including her experiences with various treatment approaches.
  • The principles and techniques of ICBT.
  • How ICBT differs from ERP therapy in addressing mental compulsions and providing functional certainty without distress.
  • Personal examples of applying ICBT techniques in real-life situations

Episode Summary:

Welcome to Christian Faith and OCD episode 119! I’m Carrie Bock, a licensed professional counselor from Tennessee, and today I’m thrilled to have Crystal Propes with us. Crystal and I connected on Instagram, and I’m excited to share her story with you.

In this episode, Crystal dives deep into her personal journey with OCD and her experience with inference-based cognitive behavioral therapy (ICBT). We often feature professionals discussing therapy techniques, but it’s equally valuable to hear personal stories. Crystal’s experiences underscore that if one treatment doesn’t work for you, it’s okay—there are other options out there.

Crystal’s journey with OCD began in childhood, with symptoms manifesting as early as age three. From emetophobia to severe anxiety during her school years, her story is a powerful reminder that OCD can evolve and change over time. Despite her struggles, Crystal persevered and eventually sought therapy. She initially tried exposure and response prevention (ERP) therapy but found it overwhelming and not suited to her needs. Thankfully, Crystal later discovered ICBT, which resonated more with her and helped her focus on managing mental compulsions and staying present.

Tune in to hear Crystal’s full story and insights. Remember, if one treatment doesn’t work, it’s not the end of the road. There’s always hope and help available. Don’t give up!

Related Links and Resources:

www.instagram.com/functionallyocd/

Explore Related episode:

Welcome to Hope for Anxiety and OCD episode 119. I’m here today with another personal story of anxiety. I am your host, Carrie Bock, a licensed professional counselor in Tennessee, and here I have Crystal Propes. We actually met on Instagram, which was really fun, and I just had reached out to her and she agreed to be on the show.

Crystal has been posting a lot of information about ICBT, which is inference-based cognitive behavioral therapy, and just her perspective of it from the client that I feel is very helpful. Sometimes we have different types of shows. Sometimes we have shows with different professionals who tell us about the nitty gritty details of specific therapy, but we always find it’s helpful to share personal stories on the podcast of people who have actually been through the struggles and the trials that so many of you have gone through with OCD, and it encourages other people to continue to seek help because we want people to know that there’s hope and there’s help and with our story today, if one treatment in particular doesn’t work for you, that it’s okay to know that there are other treatment options out there for you.

You don’t have to be stuck in a rut. I think a lot of times people feel like I’m the exception to the rule and I’m the one that this therapy is not going to work for and I can’t get help. And then they stop and we just don’t want anybody to stop today. If you hear nothing else from this episode, that’s what I would want you to know from the therapist’s point of view.

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Carrie: Welcome, Crystal. Tell us a little bit about your story with OCD. How did that start? And when did you notice it showing up? And then when did you realize like, Oh, that’s what this is?

Crystal: My story is a long one. Now that I think back about it, I mean, I didn’t think this hard about it until recently, but now that I think back about it, I knew, like, that it had showed up in childhood, but I wasn’t sure how young.

I think I was three, so, which is very young, right? I’ve lived with this my entire life, but yes, I think I was three. I started my first manifestation of OCD with emetophobia. But I had a lot of other issues with it. I was overwhelmed with big situations. I remember having so much DPDR, like, going, “What’s next?”

The kids are supposed to be excited, but I’m sitting there in silence. My mom’s like, “Are you okay? What’s wrong with you?” And it’s like, “I don’t really know. I just feel overwhelmed.”

I would get really particular about the order of my toys and, like, my toys being played with a certain way and it would give me, like, extreme anxiety to, like, let people borrow books, just all kinds of little things that shouldn’t have caused anxiety that it did now that I look back on it.

I think what really, I would say, like, when my brain broke, even though I definitely had OCD before then, I was 12. I was in 7th grade and I was a teacher’s assistant. for my teacher and so I spent a lot of time alone in her room as one of my electives and I was like grading papers and stuff.

Obviously, being quiet alone gives you so much room for your imagination to run wild and I just remember having this thought, what if you’re terminally ill? What if you have cancer? And then that just latched right on. It’s like, why did I think that? Is God trying to tell me that I have cancer? Is there something wrong with me?

I spent like a long time after that, like terrified and I couldn’t figure out why. I thought I was going crazy and I didn’t want to say anything about it. My mom because I really didn’t know what was going on and I just remember like kind of dealing with that on and off all throughout high school.

I remember seeking reassurance from my mom, like, I’m not going crazy. I’m not crazy. Am I? There’s nothing wrong with me. Just like Googling stuff to make sure I was okay. Lots of rumination, lots of body checking. That’s kind of my experience with like my early OCD and how it started.

Carrie: Those thoughts, you’re just sitting there and then all of a sudden the thought pops in and OCD gets going and you get really latched into that thought and into the meaning of “What does this mean that I’m even having this thought?

What is this saying about me?” Emetophobia, for those who don’t know that are listening, maybe they don’t experience that, is fear of throwing up.

Crystal: It has existed largely in the background for the most of my life. Like, as long as I wasn’t directly exposed to it, I was okay. It didn’t live my life around it.

My OCD has worn many hats over my 30 years with it, and most of them were not aminophobia. Even though I’ve always been aminophobic, again, like, unless directly faced with it, it really didn’t bother me until I had kids, and they’re in school, and they’ve brought home germs, and I’ve been traumatized by it.

But yes before that, it really was mostly other themes that popped up, but now it’s the opposite. Now, all my other themes extremely well, and the am phobia has dug its calls in,

Carrie: It’s interesting how symptoms like this wax and wane over a lifetime. Like you said, sometimes things are really upfront and then, “Okay, I am not as worried about those things,” and then those fall into the background, and because of other life stressors raising young children and bringing home all of the germs, obviously that’s stressful.  There’s more fears about getting sick or people in the household throwing up and then you getting sick and throwing up.

Can you walk us through that process a little more? Becaus those were the pieces that caused you to seek out ERP therapy initially.

Crystal: Right. Before I get into that, I wanted to say like, I didn’t realize it was OCD and not generalized anxiety until I was about 18. There’s a gap there though from the time I realized it was OCD at 18, but I didn’t get an official diagnosis until last year at 32, even though I knew what it was.

I didn’t seek out therapy until then because I dealt with it on my own fairly well, even though it was so hard. severe when I was in college, extremely severe, but I ended up seeking out therapy because about two years ago, my kids started bringing home stomach bugs. I was blessed with the fact that my daughter, my oldest never had one until she was five and in public school in kindergarten.

That was the first one we ever had to deal with. Nobody caught it that time. So like, it was traumatizing for like about two weeks until I was sure like, okay, everything’s probably dead. And then I was okay, but then we got another one five months later, and then we got another one five months later. We had like four, and I had two or three of them, back to back to back.

By the time I would get over one, we would get another one, and it was just back to, and the one that took our whole family down, it was extremely traumatic for me. And I think people who don’t have a phobia, It’s hard to explain the level of fear you experience in relation to a true phobia.

Some people never feel that type of fear ever in their life, but if you’ve ever been terrified of something, you have to think of the most scared you’ve ever been in your entire life. Like the scariest possible thing you can think of and being faced with that and having to take care of your kid through that and then having to deal with it yourself.

I’m literally shaking while taking care of my kid. And then I get sick. It’s like the worst I’ve ever felt in my life. All my fears are realized. It’s just as bad as I thought it would be. I am traumatized, truly traumatized from this. I haven’t been officially diagnosed with PTSD, but only because I haven’t been evaluated for it.

We decided to treat the PTSD first, but I’ll get into that a little later on. I was super traumatized. I found that my kids, we started school and my kids, I was just watching them, their every move, hyper-villagently watching them, afraid they were going to fall ill at any second, just anticipating the next bug that I was going to have to deal with.

I was spending every second home with them. It stuck in my own head, ruminating, hypervigilance, my hands crack and bleed, I wash them so much, just like so miserable, even though I was technically functional.  I was still taking care of my family, I was still taking care of my kids, I was still sending them to school, they had everything they need, they were fed, they’re happy, but then I’m sitting there playing with them and I’m not present, my brain is miles away.

Carrie: Sure. Did you have a lot of cleaning rituals related to that that got ramped up?

Crystal: I have some. My therapist is big on not telling me what’s a compulsion. He wants me to decide what I think is compulsive. We’ll get into that talking about ICBT therapy a little bit because I distinction between it and ERP that I like.

I’m a compulsive hand washer. I will admit that right away. I feel like if I’m going to touch something that’s going to go into somebody’s mouth, I can’t have touched anything in between. If I wash my hands and then go touch something that’s not food, I have to wash my hands again before I touch food. That’s probably excessive. My hands bleed. I also do some things that may or may not be compulsive. My kids shower when they get home from school, but to be fair, they roll all over the floor at school and floors are gross. And I can’t change their hair. I can change their clothes, but I can’t change their hair.

I also have a tendency to llysol” all their shoes and “lysol” all my car after they get out from school. I have a three year old that like licks everything and puts everything in his mouth. If I didn’t have a three year old that was a germ collector, I wouldn’t be this intense about it. I do have some cleaning things that may or may not be compulsions. The mental compulsions that I have, the hypervigilance, the mental review, the ruminating, they far outweigh the physical ones in, like, time and, like, distress level that they cause.

Carrie: That’s the hard thing that I see a lot of my clients dealing with is okay, you can put the Lysol down and walk away. That may be really hard for some people.

I don’t want to minimize that, or you can tell somebody, “Okay, touch this and then don’t wash your hands,” but you’re always going to have your brain with you and so you have opportunities to ruminate all the time throughout the day. Those are, I think the hardest compulsions to deal with are the mental ones, like you were saying, that makes a lot of sense to me just from talking with my clients, and it makes sense that after seeing your kids be sick so many times, that it became stuck in your brain that am I ever going to get out of this? Is this going to happen again? And then this was terrible, horrible, awful and I’m trying to prevent these types of experiences from happening.  It rose to this level of where you decided I need to go to therapy and you had done some research.

I’m assuming like other people have on what type of therapy should you get? If you have OCD. And you found exposure and response prevention. This is the therapy that’s recommended.

Crystal: I knew about ERP for a long time. I have never wanted to try ERP. I have never thought that it would work for my phobia, but I was desperate. I knew about both ICBT and ERP going in. I was struggling to find an ICVT therapist and I was desperate. So I was like, okay, let me try. this therapist that says that they do ERP and CBT and is trauma-informed and see if they can work with me, but I don’t want to do exposure therapy directly related to my phobia.

I went in thinking maybe he can work with me, and he really seemed like he might. He was really nice, good Christian guy from my state. I thought this was going to be a good experience. He had a lot of experience with trauma and stuff and honestly, if he hadn’t been where he was working, I think that he may have been a really good therapist for me, but I felt like being treated as just like a number on a assembly line. “You have OCD, you have ERP. This is exactly how we treat this.” There was no room for my personal experience. We started with it and I just felt like any time he brought up, “okay, this is what we’re going to do.” Make this an exposure or okay, now we’re going to work on a hierarchy. It gave me so much anxiety.

I never felt better after therapy. I always felt immeasurably worse thought of like having therapy was giving me anxiety and it just felt like a bunch of extra work on top of what I was already dealing with. I was like, okay, look, I’m already so exposed to this. I don’t need extra exposure. I’m already so traumatized by this.

I don’t need extra trauma. I don’t want to create a hierarchy of my fears and then you make me work through them because I already faced my worst fear all the time. Like I deal with this all the time. I have three young children in public. It really wasn’t a good fit. So I talked to my friend and was like, Hey, can you find me an ICBT therapist? And she came through for me big time. 

Carrie: That’s awesome. How long did you stay with the ERP therapist?

Crystal: There was one or two weeks where I did two sessions in a week and then others where I just did one. Of course, we get a stomach bug right in the middle of the day. It’s been like one or two weeks that I decided to start therapy and my kids have a stomach bug.

It was awful. Not only am I like trying to start therapy, I’m also dealing with my worst nightmare at the same time. Of course only like five months after we had the last one we had. It’s again, I had just gotten started to feel better and then this happens again. So I think I did four or five weeks of ERP in total.

Carrie: Okay. So there were enough sessions to really determine, like, “This doesn’t seem to be jiving with what I’m intuitively wanting to do, and I don’t feel maybe fully heard or understood how traumatizing this is for me.”

Crystal: Right. I felt like I was having to spend so much time explaining what I meant and what was really bothering me and what I really hoped to get out of it.

None of that was coming through. I don’t know, like maybe he didn’t have a lot of experience with aminophobia in general. It just seemed like he could only do exposures and plan exposures. That’s not what I wanted. I already have exposures. What I primarily wanted to get out of therapy was to learn how to stop the mental compulsions, to stay in the present moment, to redirect my attention to reality and be able to be present with my kids. I don’t think I’m ever not going to be immunophobic. I can’t imagine a day where if there is a stomach bug in my house it’s not going to terrify me. I absolutely can imagine a day where I am not worried about it unless it is directly in my house. You know what I mean?I didn’t think ERP did a good job of making me more present. It’s like, “Okay, well, you’re not present, but you just got to function anyways.” But I’m already extremely functional. I don’t need help functioning. I need help being present, and that’s where I CBT spoke to me. 

Carrie:  I will tell people too, it matters where you put the I on CBT. If you put it at the end and you say CBT I, it’s CBT for insomnia. If you put it at the beginning and say I CBT, I know we’re therapists. are confusing than it’s inference-based cognitive behavioral therapy. 

Tell us a little bit about what you’ve learned about ICBT. I know you’ve done a variety of reading on it in addition to going to therapy with someone who’s trained in ICBT.

Crystal:  Let me preface this by saying this is not an ERP hate. Like I know it helps so many people. I don’t want people to think that I’m hating on the therapy that got them functional. I do realize the value in it. I just want to say that. Now let me dive into the therapy that I love. I knew a little bit about it from a friend who had gone through it and now is a fledgling therapist herself providing ICBT therapy in her clinical rotation.

I didn’t dig too, too much. I understood the concept. I understood how it worked. I didn’t dig too much because I wanted my therapist to guide me through it. And he’s done an incredible job of that. This is a good time to get me because I’m almost done. I just finished module 11. There’s only one module left.

Inference-based cognitive behavioral therapy is based off the concept of something called inferential confusion, which basically means that you have a trigger and then your brain has an obsessional doubt about it. What if there’s a germ on this doorknob? But you have no evidence that there’s physical evidence that there’s a germ on that doorknob. It looks clean. You didn’t see anybody sneeze on it. No one’s sick in your house. You have no reason to think that doorknob is dirty, but then OCD comes in and says “Well, what if somebody touched it and if you had a microscope, you could see it? What if the person who delivered your mail yesterday had a cold and he accidentally touched your doorknob while he was delivering it?”

Your brain thinks of all these faulty reasoning methods as to why your doorknob could be contaminated, but none of that is real, right? You don’t have evidence of any of that. All you have is your imagination thinking of all the ways it could be. That’s like really where ICBT lives. It teaches you that you’ve created a story based on faulty inferences that you have gained from all these reasoning methods that seem logical in your OCD brain, but they’re just a little off.

Past experience matters, but does this matter to this situation? No, you’re probably applying it and the situation’s different, or yes, germs technically do exist, but do you have any evidence that are dangerous germs that could actually hurt you on the door? It’s just all about teaching your brain how to recognize the obsessional doubt and the faulty reasoning behind it that goes into weaving this story and then redirect yourself to actual reality, the here and now. You Dismiss your doubts because you realize that they’re based on your imagination, so they’re not relevant to your present life.

Carrie: That’s awesome. I started reading the ICBT manual. I found it very interesting going back to what we were talking about, about mental compulsions versus physical compulsions. What ERP does is it focuses a lot more on the compulsions. ICBT focuses more on stopping because there’s a loop of sessions and compulsions.  ICBT is focusing more on stopping the loop at the obsessional part rather than stopping it at the compulsive part. I think that makes a difference when you’re talking about mental compulsions, being able to say, “Okay, right now, it has kind of taken over my imagination and now I’m imagining the worst case scenario where everyone in the family is sick in the hospital, dying because of the stomach bug that I caught off the doorknob”

Crystal: I think with ICBT, it’s a metacognitive therapy. It resolves the obsession. The thing I love about ICBT is that when it works when you finally get it. I’m not perfect at it yet/ Don’t get me wrong, but the more you practice the better you get and it’s like a slow burn First, you just start recognizing,” Crap! that is so outlandish.” Yes, that’s a faulty reasoning method, but you can’t stop. You’re still compelled to do it, but it could be possible, but as you recognize more and more of your obsessional doubts and what is actually drawing you into the OCD bubble, you get better and better and better at not getting into that rumination cycle, right?

It’s like, wait, no, this is an obsessional doubt. I don’t need to take it further, but he greatest thing about it is when it works, you don’t have to sit with uncertainty.  We get to have functional certainty in ICBT and I love that because you can be certain according to your senses, right? You can be certain enough.

The greatest part about it is that you never get to the distress part because you get to sit in that functional certainty and say, okay, this is enough for right now for the present moment. Possibility doesn’t matter because it’s not relevant right now. I went through an experience recently that like could have been really triggering for me, and I used my ICBP techniques.

I went to a funeral and I’ve had some death religious OCD in the past and obviously, I was around a bunch of people. I went in a public bathroom, lots of triggering things and I feel like with the ERP would say, all right, do it anyway and just sit with the discomfort, but with ICBT, I did it anyway, but I was never distressed because we resolved the obsession. We never got to the anxiety part of the sequence. We never got to the compulsion part of the sequence because we never got to the anxiety part. It’s like, yes, I did all of this. Yes, it would have been triggering in the past, but because I was able to stay rooted in reality, and I didn’t even get into the OCD bubble at all, like, No, I didn’t have to tolerate discomfort. No, I didn’t have to tolerate uncertainty because I had functional certainty, and I just operated it as I would as any normal person in a normal, non-obsessive circumstance would have. It was really cool to like be able to explain that to people. Yes I face triggers, but I didn’t even have to face discomfort.

Carrie: Did you prep yourself ahead of time or work with your therapist ahead of time on that experience in order to be able to do that?

Crystal: Not specifically. The death was a family friend and was not unexpected, but obviously, we didn’t know exactly when it was going to happen, but if I had done this back when I was like, not as far into the modules, I would not have had as good of an experience with this.

ICBT does a lot of background buildup before you get into the real skill building because you have to learn the metacognitive part. You have to learn exactly. where your obsessions come from, why the reasoning methods are faulty, and you have to learn so much of the beginning of ICBT is learning to recognize your obsessional sequence without changing it, because at that point you don’t have the skills to change your, like, your obsessional sequence.

You just realize, “Okay, this is where my obsessional doubt is, this is what my feared consequence is, this is giving me anxiety and dread and that is why I’m going to do a compulsion. But it’s hard to just stop the compulsion with like no guidance, right? Once you realize that you can notice all of that, then you get to the later modules that teach you about reality sensing and the OCD bubble and the alternative story.

It teaches you how to stay grounded in reality and create a story that is based in reality. And then it’s not compulsive because you don’t. argue with your OCD, right? ICBT is not arguing logic with OCD. It’s saying, okay, reality says this, and I’m going to believe it. And that’s where you leave it. So it teaches you those skills.

So I had just gone through module eight and module nine and module 10, which talk about all the tricks OCD uses to pull you in and why they’re tricks. Module eight is a reality fencing and it tells you about how to stay grounded in reality and not like give in to the OCD bubble. Module nine, the alternative story, which I absolutely love because it’s like you’re choosing to create a story, but you can create any story, so why not make a reality-based story and then stick with it? That helped me so much because I had just done all of that work. I was able to use that.  I walked into the public bathroom. I was like, no one’s sick in here. The bathroom’s really clean. I’m not going to dig into it anymore. No what if, no hunting for reasons that it could be dirty or contaminated. 

I hugged a bunch of random people and there was no like, what if they’ve been sick? It’s like, well, they look healthy. They seem healthy. Nobody looks like they feel ill or anything. So, I mean, I’m just going to believe the reality based story.

Everybody here is healthy and I’m not, it’s not dangerous to hug them. And you learn those techniques and you don’t have to dig into it. It’s so helpful. I will say like, it took me months, it took me probably four months of just noticing before I was able to employ and it helps a little bit. Noticing does help. I noticed that I was able to get out of my OCD cycle so much faster, even early on, even when after module two, it didn’t really start getting to the point where I wasn’t like even creating an obsessional story to begin with until I had gotten into the later modules. So it just builds on it, but once you get it, it all happens fast.

Carrie: This is something that feels very congruent with the types of things that I teach- mindfulness, which is learning to be in the present moment. The level of awareness and acceptance, what you’re talking about, even noticing your own thought process. A lot of people in the early stages of treatment, they have a hard time even noticing that what they’re thinking is an obsessional thought.

You may have worked on that some prior to this and probably elaborated on that in ICBT, but that’s really the first step is for people to notice. Even when they’re having an obsession before it just seems like, but this just people will say, well, it feels like my thought process and it feels really true when somebody walks into that bathroom, they may feel like it’s contaminated, but what you’re saying is look for the logical evidence that says that it’s not contaminated or that it is maybe it is really dirty.  Anybody without OCD would find it disgusting.

Crystal:  ICBT spins, I’m not kidding, six modules teaching you exactly how to do that. The first six modules teach you how to slow down your thought process. That’s like the biggest thing with ICBT. You have to slow down. It’s so not intuitive for people with OCD because our thoughts race. It gets your OCD bubble too to slow down your thinking. Instead of ruminating and being like, “Oh my gosh, this is so scary. This is so scary,” It redirects you. It almost pulls you a little bit outside of it to say, “Okay, wait, how did I get here? You spend the first six modules learning how to recognize your obsessional sequence, how you weaved this obsessional story, why it feels so real and the ways OCD pulls you in.” 

Literally six modules before it even ever tells you here’s how you get out, and as you learn to slow down the process and work on the whole, do I have direct evidence of this doubt? And that was like one of the earliest things. I think we were in module two when my therapist taught me this. He said, “Just ask yourself, what direct evidence would I have to have right now for my doubt to be true?” By direct evidence, he said he means it will hold up in a court of law. We live by this principle now.  I need direct evidence that would hold up in a court of law that my doubt is reasonable. And that was one of the earliest things before I even got to the skill building part of ICBT that started to pull me out of that bubble, that started to help me with my OCD.

What is the direct evidence I would have to have that one of my kids has a stomach bug? And in a court of law, evidence, it would have to be that they are physically sick. I would have to have seen one of them have gotten sick. Because I can’t tell you how many times I was like, my stomach hurts, and there’s nothing wrong with them. That’s not direct evidence, et cetera, et cetera. A lot of times the bar for direct evidence is way higher than we realize that it would have to be. Our OCD has tricks warp us into thinking we have direct evidence, but really, we don’t have direct evidence of that. That was the earliest thing that I learned to do to help pull me out of the OCD bubble was say, “Okay, wait, slow down.” You’re creating a story. What direct evidence would you have to have for the story to be true? That was like an early, early skill technique that my therapist taught me that really helped me when my OCD was really bad before I even got into the skill-building part.

Carrie: You said there are 12 modules that you have to go through and learn. As you go through those modules, is there homework involved? 

Crystal: ICBT is like a course, literally, I would say like a college course. The way my therapist approaches it, he goes over a module with me, and he doesn’t like read to me, and I do not have the module, he doesn’t send me any of the stuff until after.

He always has some sort of analogy or thought experiment or exercise to do with me in session, and they’re always excellent. I was relating my OCD to parallel, but not exact, situations. So like, I have a lot of anticipatory OCD issues. I’m afraid of the next time we’re going to have a stomach bug.

He would parallel that with the client that was worried about, he worried about noticing shapes, and he would notice a shape, and then he would see it everywhere and get really distracted by it, and it would make him miserable. He would always be worried about the next time he might notice a shape and it would stick in his brain. He would parallel my story to that, and he would parallel, maybe my worry about stomach bugs to someone who was equally as afraid of COVID. These parallel examples, but that took me a little bit to think rationally when it’s specifically about your theme. He would go over that with me and then it would always relate to the module we were on for that week and then he would send me the homework and the homework is always a lot of it is like some writing and then there’s some exercise like thought experiments that we do throughout the week.

We would meet back the next session and go over what I wrote. First go over the quiz and then we would go over the work I did and then any questions I had about it, one to two weeks per module, typically.

Carrie: I think this is really important, Crystal, for people to know what they’re getting into when they’re looking at doing different therapies because it doesn’t really matter which therapy you choose. If you’re not willing to show up and do the work, it’s not going to help you get better in different modules, different types of therapy work for different people. That’s why we’re talking about this to let people know, maybe you have tried ERP and you’re looking for a different option. Maybe you haven’t tried ERP because the idea of it just totally terrifies you and you don’t feel like you can do that. Or maybe people say, I don’t know how to expose myself to certain things that are in my imagination, like being afraid of going to hell, there are different things that they do and exposure and response prevention to expose people to that, but it doesn’t necessarily sit well.

Sometimes Christians struggle with doing some of those exposures and having to find somebody that we will do religiously sensitive exposure sometimes can be a challenge from what I’ve heard from various people that have contacted me through the podcast. So I’m glad that we’re talking about this, but it does, whatever you’re going to do, it does take practice.

It does take intentionality and it does take work be called it the OCD bubble. You’ve spent so much time going through that over and over and over again, like it’s really patterned in your brain. So whenever we’re trying to make these new brain connections, it takes our brain a while to pick up on something new like that, that you’re feeding it. You have to do it over and over and over, just like any other habit we create in our life. We can’t go out and exercise one day and say, Hey, like I’m in fit and in shape.

Crystal: You have to exercise that brain. I will say that was the biggest thing. I would get so frustrated at the beginning of ICBT therapy because I’ll be like, “Yes, you taught me to notice all this and I can notice it. I don’t know how to stop.: That was my biggest thing and then I realized the more I practice, all of a sudden I was just doing it. I can do this now. I cannot put too much emphasis on it, even if it feels you’re just noticing and it’s frustrating that you’re noticing and there’s nothing you can do.

The more you practice, the faster you get and the earlier you notice your obsessional story, the less anxious that you will make yourself. You’re torturing yourself by weaving this terrifying story. You’re scaring yourself. Once I realized that, it’s like, “Wait, why am I doing this? I’m literally just sitting here terrifying myself. Why am I doing this?”  

I was already so far in before I realized I was doing it. It was hard to stop, but when you catch it, then you’re not quite as anxious. You haven’t woven as good of a story at that point. It’s way easier to stop. Noticing is, I would say 85 percent of the work. Once you’ve noticed it, once you figure out how to notice it and slow yourself down, that’s like 85 percent of the work. The skill-building part is only 15%. 

I spent weeks doing it, he had me doing thought chains. At first, it was retrospective and then eventually I got so good at it, I can do it in real-time.

But it’s like, “Okay, I noticed I was in the bubble. Where did I go wrong? What initial thought took me into my imagination and away from reality? That was so helpful. I think I did them for three weeks. Now I do not have to write them down. I do not have to go back and go through it at all.

I can do them in real-time. Like I said, I’m not perfect. Sometimes they’re harder than ever. For instance, if there was a stomach bug going around at my kid’s school and I knew it, it would be much harder for me to deal with that, right? Or if one of my friend’s kids had a bug, when I get faced with an online, like the other day, the weather channel decided, well, not the other day, this was like a month ago, but norovirus is going around.

I was like, no, I don’t want to know that. I spent the whole day freaked out because of that. Again, I’m not perfect at it, but I will say the beauty of ICBT is that a lot of times you hear you can’t get better without exposures, but I think we need to think about that differently. You don’t have to do exposures to do ICBT if exposures terrify you and you are not going to do therapy for your OCD because you don’t want to do exposures, you do not have to do exposures with ICBT.

You will be triggered because you’re going to have to talk about your fears to be able to do the therapy, but you do not have to do exposures. And the thing about ICBT is that you obviously eventually you’re going to stop doing compulsions and live your life. But it’s not about doing exposures for the sake of exposures.

It’s about I can do this triggery thing because I have no direct evidence that it requires a compulsion. I have no direct evidence that my obsessional doubt requires me to do anything but live to do what I want to do according to my values. That’s the greatest part about it. My therapist, he does ERP with other clients.

Sometimes he’ll be like, “Well, that’s a great exposure” But it isn’t an exposure, right? It’s just something I wanted to do to live my life. We’re just like kind of joking about it being like that. But it’s great, right? Because I didn’t have to plan an exposure, plan response prevention. I just, for instance, we’re going to go to an Easter egg hunt at church on Saturday.

That gives me anxiety, having to take my three-year-old and let him hang out with other kids. Do I need to avoid that situation? No, because no one’s ill. I have no evidence that anything bad is going around at the church. It’s outdoors in the sunlight, and we’ve gone to many things at the church before, and my kids have been fine.

My daughter goes there. All the time with her friends, and she comes back fine. Reality tells me that we can go and it’ll be great. And it’s something I want to do. It’s something that’s values-based. And so it’s not an exposure, right? It’s just me living according to my values and not having to do an avoidant compulsion because reality says that it’s unnecessary.

Carrie: Unless you’re doing massive amounts of avoiding, which there are people that do that, that avoid all types of different situations. In order to live your life, you’re going to face triggering situations, I think is what you’re saying. So you’re going to expose yourself. It’s just not a, Oh, this is a planned exposure to work through my OCD.

It’s just like you said, living your life, which feels really freeing and beautiful that you’re able to go out and do those things.

Crystal: I like to think of it as not an extra exposure, you know what I mean? With ERP, it’s all about extra exposure on top of your triggers to teach your brain how to not respond to it and don’t do a compulsion when you do this trigger,

but with ICBT, you’re remaining in reality, and your obsessional doubt is irrelevant in the here and now. That’s like the biggest thing in ICBT, like, Your OCD is irrelevant. OCD is imaginary. It is a story you have created solely in your imagination, and it doesn’t matter if it’s technically possible.

It doesn’t matter if it’s happened before because it’s not happening right now. And because it’s not happening right now, the only way that OCD could have conceivably come up with this doubt is for you to have imagined it, I love that. OCD is in your imagination, but you need to be in the present. That’s the biggest thing it has taught me is that even though I feel like my fear is a very difficult one, my fear is more probable than not, right? There are lots of people who are scared of things with OCD that will never happen. I am going to be exposed again. I am going to be terrified, and I might even be traumatized by it, but it’s not happening right now, so it doesn’t require my attention right now. That has been the biggest thing for me is learning to let go of the what if and that it’s possible and this could happen in a week because it’s not serving me any purpose.

Carrie: Through that process, you’ve found that you’ve been able to be more present with your children than instead of just in these thought processes.

What if my child gets sick or what if they brought something home or what if this or what if that?

Crystal: Constantly, hypervigilantly monitoring their every move for evidence that they might be ill, you know, I used to spend so much time doing that and I still do it occasionally, but it’s much quicker.

I’ll look at them. I’m like, “Oh, it looks fine and I’ll just move on.” Whereas before I would have stared and I would have asked how they felt and I would have dug, but digging is bad.

Carrie: Well, thank you so much for sharing your story. Tell us where people can find you on Instagram and we’ll put some links where they can learn more about ICBT from a professional perspective, but tell us where they can find you on Instagram.

Crystal: Functionally OCD. They can find me there. You can message me there. Awesome.

Carrie: Awesome. Thank you again for being on the show. 

Christian Faith and OCD is a production of By the Well Counseling. Our show is hosted by me, Carrie  Bock, a licensed professional counselor in Tennessee. Opinions given by our guests are their own and do not necessarily reflect the views of myself or By the Well Counseling.

Until next time. May you be comforted by God’s great love for you.

91. Harm OCD in Pregnancy Sent me to the ER with author Amber Williams Van Zuyen

Amber Williams Van Zuyen, author of Pregnant and Drowning tells about her struggle with harm OCD during her pregnancy.

Episode Highlights:

  • How and when did her OCD symptoms start
  • What happened the first time she sought help for her OCD
  • How her OCD symptoms intensified during her pregnancy and after giving birth
  • What helped her during her process of overcoming her OCD
  • How God helped her get through her struggles
  • Amber’s book, Drowning and Pregnant 

Episode Summary:

Welcome to Episode 91 of Christian Faith and OCD. In this episode, I’m thrilled to share an insightful conversation with Amber Van Zuyen, the author of Pregnant and Drowning. Amber’s story is incredibly relatable for those who have struggled with anxiety and OCD.

Amber opens up about her personal journey with OCD, which began in childhood with compulsive rituals and obsessive fears. She recalls avoiding stepping on lines and constantly checking for lice. Her symptoms worsened in her twenties, especially after experiencing ocular migraines, which she feared were symptoms of a serious illness.

Amber’s story resonates deeply with anyone who has faced similar challenges. She describes her struggles with health anxiety, driven by fears related to her grandmother’s battle with MS and her own obsessive thoughts about having a serious disease.

Throughout her journey, Amber grapples with the stigma around mental health and the misconceptions within faith communities.

Amber’s reflections offer a poignant reminder that mental health issues are real and deserve compassion and understanding. Her story is a testament to the courage it takes to confront and manage these challenges while maintaining faith and hope.

Tune in to hear more about Amber’s journey and the insights she offers for those struggling with similar experiences.

Related Links and Resources:

Amber’s book: Pregnant & Drowning

Explore Related Episodes:

Welcome to Christian Faith and OCD episode 91. If you’ve been listening to the podcast for a little while, you know that we love to tell personal stories of people who have struggled with anxiety and OCD. These are so important because they are relatable to other people who often feel so alone, and I think some of you are really going to resonate.

If you’ve ever experienced any type of harm OCD thoughts, you’re really going to resonate with our guest today. Here is my interview with the author of Pregnant and Drowning, Amber Van Zuyen.

Amber, welcome to the show. It’s good to have you today.

Amber: Thanks for having me. I’m excited to be here.

Carrie: You have a really unique personal story about anxiety and OCD and how that’s impacted you and your life, especially in terms of being pregnant and having your son. Take us back a little bit earlier to when you first started experiencing anxiety or OCD symptoms.

Amber: Well, looking back, I can pinpoint when I was 24 when it heightened and got to its worst point, but in early childhood, I would do things like, I’d be in the grocery store with my mom and I didn’t want to step on the lines on the squares because I believe something bad was going to happen or I just had to make sure that I did that so nothing would happen to me, or there was a little girl who had lice in class next to me and I obsessed about constantly having lice and I would go home and have my mom check constantly and it never stopped. It was always just, check again, check again maybe that’s kind of where I noticed my OCD in my earlier days. And then when I was in high school, I got obsessed with makeup and I always felt ugly, I had to cover that up during that time in my life, I would go to the bathroom during lunch periods and take it all off and then re-put it all back on just because I didn’t want anyone to see me. Looking back, those were things where my obsessive compulsive was kind of taking over. But when I was about 24, I had this really scary thing happen with my vision.

I ended up having something called ocular migraines which affected only one eye. I thought I was having a stroke, and my grandmother also suffered from MS terribly early on in my life, I saw her in a bad state, and that was also another concern of mine. So I was kind of always having obsessive thoughts about getting diagnosed with something, constantly reading things, self-diagnosing that triggered health anxiety for me.

I went to the doctor and he told me it was ocular migraines, that there’s nothing to worry about, but I also was concerned about MS too because my grandmother had it, and I was just so terrified and it just played over and over in my head that I was basically already living with a disease that I didn’t even have to the point where I didn’t wanna go out of the house.

I was obsessing with medical books, reading symptoms over and over again, and actually convincing my body that I was having those symptom. This went on for about a month, and I went to the doctor and they prescribed me medication, and I refused to take it for about a month, but I eventually did, and I slowly got better I never completely got over it, but I learned how to deal with it differently.

Carrie: Did they recognize the OCD at that time?

Amber: No, they told me I had anxiety, but looking back, I definitely in the mind it’s repeat, repeat, repeat. It was really destroying my life because I obsessed about it so much as I was living at 24 7 but I eventually got on medication and it got better. And then it was one of those things where I’ve always felt guilty about it because it’s like a lack of faith I feel in a sense, but I do feel like it’s an imbalance that I’ve struggled with and that I truly need medication for it. There have been points in my life where I’ve been off of it and then on it again, and then, Recently I’ve had a trigger because I got off a medication and I was triggered again with medical stuff because of stories Christina Applegate just came out with MS and it triggered that time in my life again but with that said about MS, I see a lot of people doing wonderful with it.

My grandma just got diagnosed at such a weird time she didn’t get diagnosed for with it for 10 years people said she was crazy. She went to doctors and they told my grandpa, you know, your wife’s crazy you need to lock her up in a mental institution but really she was really sick with MS they just didn’t recognize it at that time. She got so debilitated and basically, there was nothing that they could do for her she was too deteriorated at that point to help her. A part of me feel so guilty because I see all these people doing so wonderful with it or just having a good attitude with it and that has been a struggle for me, I feel guilt.

Carrie: Going back to the piece about faith, because I think a lot of people have that wrestling that struggles with anxiety or OCD, well, maybe this is a faith issue, “I don’t have enough faith in God kind of flesh that out a little bit more for you was, I don’t have enough faith, if I do get MS, that God’s going to take care of me and I’m going to be okay.”

Amber: Yes to me, I felt so bad because here I am creating these things in my own head when there are people out there suffering with it and doing good with it because the most courageous people that I know, my brother-in-law’s a paraplegic and he’s just a testimony.

Just such an attitude and I just think God, what is wrong with me? Why am I like this? Is it a lack of faith, but really it’s anxiety and OCD, and it’s truly a disorder? And I had to come to terms with accepting that because I know now going through several years, I’m almost 40 and dealing with it, that it is an actual disorder.

When I’m on medication, I can control it and I can think clearly, it’s almost a bunch of trash jumbled up in your head and then it gets cleared away and you could see clearly without the medication I couldn’t see clearly.

Carrie: I think it’s really hard for anybody to accept that they have an issue, whether it’s physical or emotional. There is a sense of grief and loss of saying, okay yes, I am struggling with OCD because it wasn’t something that you wanted, it wasn’t something that you brought upon yourself it just, it happens, and there’s probably genetic and environmental factors that contribute to all of that most mental health conditions. So that piece of just learning the acceptance is hard.

Amber: It is, and a lot of people are just, oh, get over it they don’t understand so there’s just this stigma that anxiety isn’t real, your OCD is just something that you are making up. You get a lot of that from people that don’t understand it, and I think that’s where a lot of the guilt comes in is people just throw it to the wayside.

This isn’t a real problem, this is just a you problem, but anxiety has a face just like diabetes or anything else does, and it’s an actual disorder some people need medication for it, some don’t, I tend to relapse when I’m not on medication.

Carrie: Tell us about that in terms of maybe responses from people in your faith community when they found out that you were struggling.

Amber: Well, I had a really interesting experience while I was pregnant, I was really struggling with really dark, violent thoughts, and I was thinking these thoughts were my thoughts and I was struggling so much my mom didn’t know what to do. She made an appointment with a Christian counselor at her church, and I went, I sat down with her. She was an older woman, and I began to tell her, I’m struggling with these thoughts I’m getting really depressed, I don’t know what to do. And she looked at me in the face and said, you don’t have real problems, my daughter has real problems, my daughter almost died giving birth, you don’t have real problems. And I just couldn’t even believe that she had gone there and said that, because I’m already so fragile she could have pushed me to, I don’t wanna say suicide, but there were moments during my pregnancy that I questioned those things. Without my family I could have done that, which is her saying that, and it was just so shocking coming from a Christian counselor.

Carrie: That’s really unfortunate that happened it sounds sometimes counselors can have an internal reaction to things that people tell them, and if we’re not in check with those experiences that happen within ourselves, we can do damage. And so it sounds she had some kind of, we call it counter transference reaction towards you as a pregnant woman and dealing with things. And clearly it sounds like she was not up to speed on OCD or what those symptoms are.

Amber: Yes. She definitely was not qualified for at least someone with my condition going on.

Carrie: When did you get that diagnosis of OCD? Was it when you were pregnant? Did someone tell you like, “Hey, this is harm OCD, these are some classic things and these are intrusions it’s not really you?”

Amber: Probably I was 12 weeks pregnant, these obsessive thoughts started five days after I found out I was pregnant. I’ve always had that health anxiety and I’ve always worried, I wasn’t really sure if I wanted to have children at the time, and I was still married. My mom’s like, oh, when are you gonna have kids?

Everyone’s like, “When are you going to have kids?” I don’t know. I was 33 and I’m like, okay, I guess we’ll try and I got pregnant really fast. It scared me and I was laying on the couch one day, a few days after I found out I was pregnant and I was petting my dog and I had this thought in my head where she trusts me so much, I could just snap her neck and she wouldn’t even know it and it scared me.

I had no want or desire to do that, but I started to think, am I starting to go crazy? Am I going to get postpartum? And then I let this repeat, repeat and it turned into a big monster, and it got to the point where I called my OBGYN, and I said, these are the things that are going on in my head and I don’t know what to do, I’m scared that they could happen, not that I want them to happen, but they could and she told me, well, thoughts turn into plans, and then things happen.

Carrie: Oh my goodness. Thanks.

Amber: That triggered me so bad that now the thoughts went from my animals to my mother, to my husband to everyone around me is not safe anymore. Any object around the house, I took all the knives out of the house, put them away, I was scared of the knife drawer, I was scared of the cord that goes through your iPod I thought anything could be a weapon. I was talking to my good friend, she’s a nurse, and she was just walking me through all this, and then one night I was lying in bed and I thought I heard a voice say, just do it already but it was really my thoughts but my friend got freaked out and she said, it’s time for you to go get evaluated. I went to the hospital the next day I was so incredibly terrified I thought everyone’s gonna find out, but at least they will shackle me down and I can’t hurt myself, I can’t hurt anyone else, and this baby can have a chance, so I’m gonna go, but I really thought they were going to 50150 me, they didn’t.

Carrie: In terms of involuntarily hospitalize you, that kinda thing?

Amber: Yes they told me that I was suffering from horrible OCD and anxiety, extreme levels of it. I was like O C D interesting, I didn’t really think about that ever being a thing, because you know, when I think of OCD, it’s like locking the door five times or checking. I didn’t do that, but my mom did that I don’t know if it was hereditary. I ended up going to a therapist through my insurance company and I ended up getting on medication while pregnant, and that was a whole other ordeal as well, because I had one doctor tell me he was, I just switched carriers, so I’d gone to a new carrier while I got pregnant.

This is a whole new doctor, and he told me that because I told him I was suffering from anxiety and this was prior to me going to go get evaluated. And I was just kind of seeing what I could do, I tried acupuncture and I was going to try to get a referral cause it was really expensive to go out of pocket every day because I was suffering so bad, because I said antidepressants while pregnant, what do you think about it? And he said it’s equivalent to a mother drinking every day pregnant. And I’m like, what?

I was just shocked well, okay, this isn’t an avenue I can go down this isn’t going to work. I guess I ended up getting put on medication and I had another doctor, a different one after going through the evaluation process, she put me on something, a roll of doses and it turns out that it’s not the stigma that’s attached with taking antidepressants while pregnant. There’s some that are more harmful and then there are others that don’t travel through the placenta quite the others do. And I’ve asked several doctors and they say that it’s a very low-grade risk as far as the baby’s health goes certain ones and the one that I was on in particular, Prozac, was a friendly one for pregnancy.

Carrie: That’s interesting that your first doctor said that because there are all kinds of studies that have also been done on depressed mothers who are pregnant and that can actually cause harm, low birth weights and those types of things.

Depression in itself is not good for pregnancy, but taking an antidepressant sometimes can help, mitigate some of those risks from the depression.

Amber: Yes.

Carrie: Did your baby come out just fine?

Amber: He came out wonderful. I missed one little part of that story when I told my OBGYN my thoughts, she put me on a medication instantly and not a lot of high risk to it. I was terrified I was on that for six weeks, and then they switched me to Prozac, which is a lot better but he came out beautiful, perfect, good birth weight, he was seven pounds, eight ounces.

Carrie: That’s great. Do you feel like that changed the course of the rest of your pregnancy? How far along were you when you got on the medication?

Amber: 11 weeks.

Carrie: You had these symptoms really early and I’m not a doctor, so I don’t know a ton about this, I just know from anecdotal experience that individuals I’ve talked to have struggled with OCD. Some of them, I guess with all the hormones and different things that are going on in your body and pregnancy is somewhat stressful to your body in general, that can increase people’s OCD symptoms.

I don’t know if you’ve talked to other people who’ve had similar experiences or heard or read articles or things like that.

Amber: Actually, I had two girls reach out to me that kind of heard about my story. Their OCD was a little different. One girl was just terrified of throwing up she has this horrible fear of throwing up, and she was obsessively thinking about it during her pregnancy, and it was derailing her from her everyday life.

She couldn’t focus, she couldn’t go to work. I kind of tried to talk to her as much as I could through it, just knowing that she’s not alone, that we’re all in this together, and that we all have different little things, but they’re all kind of in common when it comes down to the core of it. And then there was another girl who suffered horribly with depression and my boss at my job kind of hooked us up and I kind of just texted with her and she ended up getting on medication while pregnant, and that was a big game changer for her too. She didn’t completely get through her OCD depression during pregnancy, but it helped tremendously.

Carrie: That’s great. I think it’s mental health it’s so important to talk about these things while pregnant too and this is kind of close to my heart because I had some mild depression when I was pregnant with my daughter, and I think I struggled so much with like the shoulds. Well, I should be happy because I got pregnant and I was older and had lots of friends and family that had dealt with infertility, and so I put all these kinds of like shoulds on myself. You should be happy and I had this expectation that I was going to still be able to be fit during pregnancy and dealt with some back pain and different things. It was hard I really had to read just things. I guess I say all that to say I want people to know pregnancy is a happy time, but people can still struggle with some pretty significant mental health issues through that experience.

Amber: Yes, I mean when I had my baby, I held him and I didn’t feel anything right after I had him and I’m just thinking, aren’t I supposed to feel all these things? I just felt numb. Before they make you go home they have you watch this video, don’t shake your baby, don’t do this, don’t do that and I just felt, or if you’re feeling these things, come back in it’s one of those postpartum videos. And they’re playing this because they know who I am you know, just like all of these fears and for the longest time after he was born, I would get these bouts of fear changing him. I’d feel I’d lose control over my hands and they would do something to hurt him not that I wanted to, just the fear of it. And I would have to take him to my mom’s and go, just take a breather for a minute, go for a walk, and kind of work through that.

Carrie: I think the things that you’re talking about, one of the reasons OCD goes undiagnosed is because people don’t know what a lot of the symptoms are and that the obsessions can take a variety of different forms.

It sounds like you’ve struggled with your share of harm, OCD obsessions, but also somatic obsessions in terms of your body, and maybe there’s something wrong with me and maybe I’m really ill. Tell us a little bit more about how you got through that dark part in your life spiritually, this is the lowest point I feel like I’m going crazy, I feel there’s something really wrong with me, I don’t know what it is God help me.

Amber: I meditated on the Bible so much, just verse after verse, great glory from harvest I would put him on every night about fear and worry and anxiety, and I just would fall asleep to his messages and it would give me peace and calmness.

That was the only place I found a place where I could take a deep breath and just be like, I’m going to be okay. Another book, which really helped me was Battlefield of the Mind by Joyce Meyer. That just really helped me put into perspective. I can have a thought come into my head, but I don’t have to let it make a home there.

Just that God got me through it I never felt so close to him, but yet so close to the enemy as well I just felt it was a battle for my life. I definitely feel, Yes, I have anxiety and OCD, but there was some massive spiritual warfare I’ve never felt anything like that ever and it’s only by the grace of God that I got through it.

Just prayer, prayer, prayer, talking, I talk to a lot of Christian friends and that’s one thing that I think is a strong suit in me. I don’t have money, but I’m an open book and I tell people I just spill my guts. I think a part of that was a big part of my healing process, just letting it out, letting people know I’m not ok.

Letting them pray for me and I got baptized when I was pregnant was a huge thing for me it was like a rededication. My faith is stronger now than it has ever been, and I’ve never felt closer to God during that time it was wild.

Carrie: Absolutely. That makes a lot of sense. The harder circumstances and his sufferings lead us closer to God and we discover more about who he is through those really hard times in our life. Then you felt led to write this book titled Pregnant and Drowning. Can you tell us about that?

Amber: While I was pregnant and going through all these things, I so desperately wanted something to relate to. I could find little tidbits here and there about women that had suffered from postpartum. Some are a little bit similar to mine, but not a whole lot.

I didn’t find a whole lot on harm OCD when I was going through this, and I don’t know if I wasn’t navigating correctly or how I was searching, but it just seemed so taboo to talk about and I just wanted people to know that you are not your thoughts. One thing that I really struggle with, and this is just strictly my opinion.

When I see a horrible headline where a mother bills her children, I think that is not postpartum in my opinion, that is evil and from the enemy. The devil does all these things to make you think that you’re going crazy and that you’ve got to do these things I’ve never had that desire. When I see that and I see postpartum, I go, I don’t know if can postpartum go that far to where you could harm a child like that.

I don’t know I just wanted to tell my story because I would never do something like that, and I felt like a monster and I was ashamed of it, but I know now that wasn’t me those were just thoughts that I invited in and I just could not get them off of the OCD wheel in my head.

Carrie: I appreciate you being so vulnerable about some of those specific thoughts that you had, because I think a lot of people, even people who come to therapy that I see, it takes a little while before they can even open up and talk about some of the things that are going on in their head because they feel they’re so horrific.

And then if I start talking about it, I’m going to possibly start obsessing about it, it can be really tough for them and I think that other people will be listening to this and find it very relatable of some of the things that they’ve had. I appreciate what you said earlier too, about how you can have a thought come in and it doesn’t have to make its home there, like you don’t have to continue to dwell on it you can notice there’s a separation that we can create. I’m having this thought, but one that’s not a reflection of my character which is so important and then two, it’s a thought. I can separate myself from that and say it’s not the same thing as a desire that doesn’t mean that I want to engage in that.

That’s why we call them intrusive thoughts because they intrude when you think about something that kind of pushes its way in, that doesn’t need to be there. That’s something that a lot of people, especially when they’re first kind of getting to know themselves in OCD that they really struggle with.

They think, Oh because I had this thought about hurting myself, my animal, my kids, whatever that means, somehow there’s some deep-seated secret desire that I want to do that, and that’s not the case so it’s important for people listening to this to know that.

Amber: There’s such a difference and it took me forever to realize that because I thought I don’t want to do these things, but why are they in my head because I won’t let them go I’m giving them value. I’m creating this monster that’s under my bed, and I can’t get rid of it until I can figure out that there’s a difference between a thought and who I am as a person, and that doesn’t reflect me.

Carrie: Your book is about your personal story and some things that were helpful and beneficial to you during that process.

Amber: It starts off in my earlier anxiety and then it moves on to my pregnancy, and there was so much darkness in that time and just the struggle I went through to try to get me in this baby through that journey also, I ended up having another baby and I was on medication the whole time. It was a great pregnancy as far as mental health goes totally opposite.

Carrie: That’s so hopeful too for people to know that they can have a different experience than they did the first time, even if they had difficulty with their mental health.

So you just kind of knew going into the second pregnancy, okay, I know what I’m dealing with I know what thoughts could come up, I have some more tools, skills, or resources to be able to separate myself from those and distract myself and move on. Did you ever get any good therapy in this process to specifically deal with the OCD?

Amber: I went to a couple of meetings. It was kind of far away from where I lived and I should have done the group thing I think it’s helpful. I am interested in joining one now cause I think it’s so important to support each other and to realize you’re not alone and that we can all get through this together, just hearing each other’s testimony, each other’s stories, helping each other through struggles.

I know that for me, I don’t have a lot of friends that struggle with the same things I do. I have one friend that has pretty bad anxiety, so to be able to relate to her is medication and therapy. Just to be like, “Hey, oh gosh, you do that too oh, okay I understand how that feels.” Just knowing that you’re not alone is such a game-changer I think.

Carrie: Amber, you have such a powerful testimony and I appreciate you coming on and sharing this with us, I hope that people will get your book if this is something that they’ve struggled with and so that they can kind of relate and relieve a sense of shame that they may be having over dealing with some of these thoughts.

Amber: Well, thank you so much for having me.